Javier's prayer

The wisdom of other parents who have special kids never ceases to amaze me. I have opened up to them, and the way they opened up to me was totally unexpected since some of them were not even that close to me. They shared their feelings after they found out about their child’s condition, their fears, their hopes, the therapies/interventions their child is going through and more. While talking about our concerns may not be able to completely solve the condition of our children, there is something uplifting that our emotional connection bring.

I find comfort in the fact that the people who matter in my life know about Javier's condition and I am thankful that I am able to speak openly to them about the topic. Of course, I am still not the type who will just say it to anyone. I understand some people may find it discomforting to know such information.

Last night, Javier did something that made me smile. Before sleeping, I reminded him that it was time to pray. Normally, I will recite the prayer to the guardian angel and he would be filling in the blanks I have left for him.  Our prayer together would go something like this:

Me:             Angel of..

Javier:             … God

Me:             My guardian…

Javier:             … dear

Me:             To whom His …

Javier:            …love

Me:            Commits me…

Javier:            … here

Me:            Ever this…

Javier:            …day

Me:             Be at my …

Javier:            … side

Me:            To light and …

Javier:            … guard

Me:            To rule and…

Javier:            … guide. Ament. (He likes saying Ament instead of Amen).

Last night was different. Instead of me saying the first part of each phrase, Javier said the entire prayer all by himself. Not too bad, kid. You make your parents proud.